Skip to main content
DraftWave 6Owner: TBDReviewers: unassignedLast review: not yet reviewed
Who should read this:ELSI specialists

Guide for ELSI specialists

You check that the system respects the ethical, legal and societal commitments of the governance: transparency, purpose limitation, fair access, and respect for data subjects.

Your questions and where to find the answers​

QuestionAnswer
Which uses are allowed, and which are excluded?1. Introduction and goals
How are data subjects informed, and how can they object or withdraw consent?8.6 Legal basis, consent and objection
What is published about each project?6.3.4 Transparency and communication on data use
How is subject-level discovery kept safe?6.2.2 Data discovery
When and how can users reach back to data subjects?6.3.5 Reaching back to data subjects
How are incidental findings handled?6.3.8 Incidental findings
How does healthcare reuse limit access step by step?6.3.3 Healthcare reuse
How is it ensured that only non-personal results leave the secure environment?8.8 Output control
tip

The box at the top of every page shows which governance sections the page implements. The governance traceability page shows, for every governance section, where it is implemented and what is still missing.