Skip to main content
DraftWave 6Owner: TBDReviewers: unassignedLast review: not yet reviewed
Who should read this:Policy makers

Guide for policy makers

You represent a ministry or public body backing the Genome EDIC. You want to know what the system delivers, what your country must provide, and whether it respects the commitments of the 1+MG Declaration.

Your questions and where to find the answers​

QuestionAnswer
What is the system for, and which uses does it support?1. Introduction and goals
What must my country put in place (organisation, infrastructure, people)?2.3 Organisational constraints
What stays under national control, and what is done at European level?3.3 European, national and User Organisation scopes
Who decides on access to which data: my country or the Genome EDIC?3.3 Scopes, ADR-0002 Who decides on access, per type of dataset
Do genomic data leave my country?4. Solution strategy
How does this fit the European Health Data Space (EHDS)?8.11 EHDS integration
Which options does my country have to organise its national node?7.2 National deployment patterns
What are the main risks and open issues?11. Risks and technical debt
Which key decisions were taken, and why?9. Architecture decisions
How is my country’s implementation described?National implementation profile (template)
tip

The box at the top of every page shows which governance sections the page implements. The governance traceability page shows, for every governance section, where it is implemented and what is still missing.